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fed up

well, i don’t know where this came from, but yesterday i realized that i had had it. i do not want to be tied to using a cane or walker, or be stuck in a wheelchair, or spend the rest of my life stumbling and struggling not to fall over. i’m sick of having to struggle to get out of my chair, etc. i feel like i’ve done everything the doctors have told me to do, and still it gets worse. it’s like doing the same thing over and over and expecting different results each time – isn’t that the definition of insanity?

now, maybe this is just the way it is and will be, that i will get progressively worse and more feeble until i can’t walk or drive a car or work – or anything. but there has to be be something that will make a difference. i believe the human body has remarkable healing powers, if only we would get out of the way and let it heal. i feel like all these drugs are only getting in the way.

the two things that come to mind are homeopathy and macrobiotics. homeopathic theory as i understand it, is that disease (read “dis-ease”) is a basic imbalance in the body that manifests itself in ear infections, allergies, other chronic illness. if these are treated symptomatically, which is what we usually do – take an aspirin for a headache – it does nothing for the underlying imbalance, and only suppresses the “expression” of that imbalance. push it down over here, it will pop up again over there. until the imbalance is treated – the wholistic approach – expressions of the imbalance, in the form of infections, colds, flu, etc., will keep appearing. i’ve heard plenty of stories from parents who were going to put tubes in the ears of their ear-infected children, only to try homeopathy instead and never have an issue with ear infections again. conventionally, we deal with the symptoms, and think, oh, good, that drug “cured” that infection, when all it did was suppress the underlying imbalance, which will express itself again in some other fashion. that’s how i understand it, and i think it makes a lot of sense – and can even be applied to larger organisms, like the human population and violence or poverty.

anyway, i feel like if i put simple, unadulterated food into my body, food that effectively allows my body to not be burdened with processing nasty drugs, chemicals and hormones and pesticides and other stuff that is in processed food, then it will be more able to heal itself. maybe too simplistic, but i always thought the simplest answer was usualy the right one. so – i’m feeling the need to vastly simplify my  diet. no more meat, sugar, additives, etc. the macrobiotic diet makes a lot of sense to me. anyway, i’ve tried going down this path before, and found it very difficult when living with people who do not eat the same way. but i will try to use the anger i feel toward what has happened to my body and my strong desire to heal as much as i can to keep on it this time. maybe i actualy will.

homeopathy, i don’t know if it can do anything for me, beyond the theory (which i may have all wrong). unfortunately, dealing with people trained in this stuff, trained to offer advice and direction, are expensive and never covered by insurance.

anyway, i felt so fed up yesterday – the thought of not doing certain things because they were too hard – getting in and out of the car, walking, etc., just really made me angry. and i felt that i had been too passive, accepting what the “doctors” had been telling me – people who, not to get too cynical, but people who’s mission is, underneath it all, to keep me coming back and paying them. what incentive do they have for helping me get healthy? maybe they are right, maybe my destiny is fixed in a slow decline and there is nothing i can do about it, but maybe they’re not, maybe i can do at least something to move in a direction of healing. i have no idea how to get there, or even where to start, but i’m going to go cook up a big pot of brown rice, and start cleaning up the way i eat. no more chocolate chips.

it is actualy a sunny day today – it is my cat rex’s 15th birthday today – so that is good. maybe i will sit out in the sun and read. so there.

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no more

for some reason, it just struck me today that i am fully fed up with my physical situation as it is now.  i don’t want to be in wheelchair, or use a walker or a cane the rest of my life. don’t want to carry minor pain the rest of my life. i want to start investigating macrobiotics, homeopathy, etc. i am just fed up and completely sick of the drugs. i’ve done everything the docs have told me, and i’ve gotten progressively worse. maybe that’s just the way it’s going to go, but i am angry, and NEED to be more proactive in HEALING this problem. i don’t believe it can be impossible – the body can do remarkable things. i have no idea where any of it will lead, but here i am at 50, and i’m shuffling and nearly falling and not sleeping well and starting to feel that there will come a day when i can’t walk at all  or drive a car. getting dressed is already difficult sometimes, taking a shower is no longer the refreshing experience it used to be. i can’t accept that this is just the way it is.

i had an mri a week ago, and my neuro said that if we see any activity, he will strongly reccomend my getting back on meds, which in this case means cytoxan (pretty nasty stuff). i said ok, i’d do it. but now i’m not so sure. there is no proof that this will do me any good, but plenty of evidence it wil be unpleasant (at best) and harmful (at worst). so i will wait to hear about the results of the mri.

but i’m tired of doing everything THEY tell me to do, and i keep getting worse. there has to be a better way.

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about three years ago, i found a very cheap – $100 – wheelchair. my wife had bought a transport chair, the kind that the passenger can’t drive (no hand-wheels), and i wanted one i could drive myself. so i found this one, and bought it, and never liked it. it was easier to walk than drive this chair. about a month ago i found this one, a karma ergonomic, which is about half the weight, folds easier and flatter, and i can actually drive it. i really only use it at work or if we’re going somewhere that requires walking, but it is very nice. comfy. i still seem to have to work pretty hard the drive it, but that’s probably due to my chicken arms. i’m hoping that with some time, they will turn in to popeye arms, and i can finally invite people to the “gun show.”

for father’s day, my daughter robin wanted to get me a dvd or cd, but my wife steered her to a t-shirt which she got, and which i thought was very funny. go to cafe press- there’s some very funny ms slogan stuff there.

and the drive up window.  i will admit to craving a greasy burger from time to time, but usually not bad enough to sturuggle out of the car, stumble into the restaurant, and then struggle back into the car. and i know it is bad environmentally to sit and idle at the drive up, but i wish there were more things one could buy at drive ups. omg, they are so handy for people who can’t get out of the car.  so far there’s the bank, burgers, and a few pharmacies. oh, and dunkin’ donuts. i’m not sure what else there could be, but if i don’t have to go thru the process of getting in and out of the car, you’ve got by business.

and just because there haven’t been enough links in the post, here’s one more.

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