right now, i’m trying to deal with the most distressing leg cramps – every night for several hours, until i sedate myself with ambien so i can sleep. really quite astonishing. nothing i’ve taken yet makes a dent – neurontin, baclofen, zanaflex, even a homoepathic remedy with quinine that used to work. on my list for this week is another call to the neuro to see if we can figure this out. also need to continue the conversation about the leg-drop, and how the steroids have brought no releif, and what to do next. i try not to get discouraged, but it gets hard to keep a positive attitude in the face of what appears to be disease progression.
but then i tune into pandora, and listen to some great music, and it cheers me up. abd i need to listen to mary worth – attitude is everything.