welcome to the club, merelyme. in a way, it is heartening that this little community of ms bloggers is growing, and providing support to more people. i wish there was no need for it, but there is, and i’m glad we can be available for each other.
well, ok, i’m scheduled for the first round of pre-novantrone testing, an ekg (or maybe it’s an echo, i don’t remember.) it’s a little disconcerting that i need cardiac testing and monitoring before and during this treatment, but i guess i am lucky to have this technology available to me. i just want to get it on. i have high hopes that i won’t need the heely shoes after all, or the left-foot accelerator that i can’t seem to find anyone to install for me. the sooner the better.
it used to be that whenever i passed a hay truck on the road, i’d wish for a lot of money, or perfect health for my children, depending on how i felt that day. now i wish for ms to disappear. this last month – with the bad leg getting worse, the steroids not working, and the prospect of the chemo (which is only a temporary stop-gap), the whole thing has become another level realer. i struggle to keep my spirits up, and not to wallow in the misery of my $%^*& body.
i bought my kids an old 1991 subaru last week, so they can get themselves to work. it chugs and rattles, but it seems to get there and back. needs a tune up and such, but so far so good.
and who would have thought that you could learn to dance online?