off the fence, on the train

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(no, that’s not really me on the train. i don’t look that good in pink…)

the best endorsement my neuro gave me yesterday as i signed the (not so scary after all) paperwork for tysabri was that if it weren’t for those two people dying two years ago, and the subsequent removal from the market of tysabri, the other crab drugs (copaxone, rebif, et al) would be off the market, because no one would be using them. there would be no need for them. i read postings on a few forums yesterday, and was already pretty firmly on the tysabri side of the fence, but that comment really did it for me. in the end, i probably have a better chance of being killed in a car accident than by pml.

anyway, i am now off rebif (yay) and will start tysabri at the end of july. i think my fantasy of getting “all better,” or at least feeling that way will more than likely remain a fantasy. some people do feel much improved on ty, but mostly the goal is to stop the progression. so i will probably still want the hand controls for the car, although i will try to wait a few months to see if i am one of lucky ty patients who gets at least a little better.

i am glad to be off that fence (my butt was getting sore) and to have the snow-globe effect in my head a little settled down. now it’s just the heat.

and why is it that we all call hillary clinton by her first name, but all the other candidates by their last names?


Author: stephen

stephen harris is a writer, painter and a photographer who lives with his family in maine.

2 thoughts on “off the fence, on the train”

  1. Maybe so they don’t confuse her with Bill? LOL!! Good question =D

    You can do this, the results say a lot, though there are no guarantees. Stay positive! You are a strong person, you are not average, therefore the percentages don’t mean jack.

    I’m so glad you had a great time together with wifey. That’s so important.


  2. wow….i will be starting rebif this summer just as you are getting off of it. i will be anxious to see how you like the tysabri. sounds like you have really researched it. thanks for stopping by my blog…i will try not to be so neglectful…i haven’t visited anyone in ages!

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