did my 7th tysabri infusion last week. when i had #5, the nurse who did the iv had a bad time getting it in – tried twice and then had to have another nurse do it. #6 i got the same nurse, who seemed more nervous about it than i was, and #7 it was her again. i wish she would stop acting all nervous. she’s supposed to be the confident one – i’m nervous enough for both of us. this time, she was great, hardly felt it, tho i did seem to bleed a lot.
i’m still bummed that i don’t seem to feel any benefit. i know i’m not necessarily supposed to feel any better, and i guess the “benefit” is that i might be worse off than i am were it not for tysabri. but there is no way to know if it is actually helping me or not. one of the most frustrating things about ms – not being able to definitely tell if a certain therapy is working, or if losses and gains are just the natural course of the disease.
i’m also doing the swank diet, along with trying to lower my carbs, and eat less in general. it’s a better way to eat anyway, ms or not, and i might have lost a pound or two. but nothing dramatic. i guess at this point, status quo is the best i can hope for.