i have a list on my firefox toolbar of life-list links, places to go and things to do, before, well, ok, i’ll say it, before i either can’t do them due to disability or because i’m dead. i don’t actually think i’ll ever get to machu picchu, or even ride the green tortoise, but they are both on the list. the list isn’t supposed to be a list of things i can easily get to, like get a really nice suit, something i can just go shopping for. these are pie-in-the-sky goals, things that, were time and money not longer an object, i’d do. and if i ever manage to retire and not be living under a bridge, maybe i can get to some of them.
i don’t really have any desire, or use for, a really nice suit, but i would love to see angkor wat before the chinese bulldoze it. the newport jazz festival is probably more doable, considering my disability, but i don’t think even macchi picchu is completely out of reach, given enough resourses. given enough resources, anything is within reach.
this art show i did last weekend was sponsored by teva, who make copaxone, and featured a lecture by a local neurologist who said, among other things, that his theory of the course of ms is that at the begining, there is more inflammation and less degeneration. after 20 or 30 years, those ratios gradually reverse and there is more degeneration and less inflammation, which is why, according to this model, the current medications, and even the new ones coming down the chute, are not effective for secondary progressive disease, where there is less inflammation – these drugs and other treatments are really only effective against inflamation. not really encouraging, but it was interesting to hear it laid out like that. and reinforces my desire to be done with tysabri. i don’t think it’s doing me any good, and i just don’t see the point in doing it any more.
anyway, what’s on your life list?