in praise of not having to get out of my chair

now, i’m 100% for supporting local merchants and producers. you won’t find a more ardent proponent of the “buy local” movement. if i could, i would never go any further than i had to to spend my money. but (and you knew there was going to be a “but”) i am also a big fan of the availability of online shopping. there are those – i am one of them – who find that going out to run errands, go to the book store, pick up a cd, get to the post office to send a gift to someone, things like that can be at best problematic.

as much as i would rather purchase a book or cd from a local merchant, being able to go to an online retailer who can sell me the item at the same cost (or less, if they offer used items), with a little added for shipping (which i think of as comparable to the cost of gas and wear on my car), and have them ship it to the birthday girl or boy, or other recipient, is a blessing.

i am very excited to have been invited to take part in a web cast put on by acorda therapeutics, maker of ampyra, a medication that will be a replacement for the 4-ap (fampridine) that i now get from a compounding pharmacy. while i like the idea of supporting a small, local pharmacy, the stuff i get from them has some big limitation, which i hope ampyra will address. 4-ap only lives in the body for 4 hours, and so has to be taken every 4 hours. it also can cause seizures if the dosage is exceeded. i’ve never had a grand mal seizure, but i bet it’s not a great deal of fun.

so this webcast, march 17 at 8 eastern time, will feature the ceo of acorda, and acorda’s chief scientific officer and the vp of medical affairs. i am mostly interested in the cost (the 4-ap is relatively inexpensive) and the availability – will insurance cover this drug, will my neuro like it, will it be more effective than the compounded 4-ap, etc. i am expecting to take part, and i’ll report back here what i find out. (i’ll take notes!)

this is the second time “one life” has been noticed by a business (first was land’s end). i know they use search bots to look all over the web for certain key words, but somehow i like the idea that what i write here gets noticed by people i am not directly writing to.

i’ve also started tweeting. just fun stuff for now, tho i might set up another account to tweet about ms. it’s great to get tweets from steven colbert, “mrs.” steven fry, my neice, my son, my wife – i’m trying to find sarah palin’s tweet address (or name, or whatever) i hear her tweets are rather entertaining, tho not, i don’t think, intentionally. anyway, it’s a big world out there, and getting bigger, and more people are watching than you know. so, as they used to say on hill street blues, be careful out there.

Share this Post

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s