When I was in college (in a former lifetime), I had a girlfriend who’s parents were, to my limited worldly experience, very Italian. I used to love visiting them with her on weekends – her mom was a great and prodigious cook. There were always tons of classic Italian eats in the fridge. One weekend in… More The Overeating Analogy, part 2. (Further adventures in the Garden of Eatin’.)
This just came to me this morning while I was in the shower, where I do a lot of my deep thinking. I’m heading off for a few days of a mini family gathering, and I was thinking about how hard it is to explain the kind of fatigue that can set in, and persist,… More The Overeating Analogy
One word at a time. One step at a time. One word at a time. One step at a time. One day at a time. One thing at a time. I am reduced to a life of ones. How soon One letter No steps One hour one minute. This one life Contracts And I search… More One Life
I’m sure everyone who’s anyone has seen the picture of a concert goer crowd surfing in a wheelchair. My reaction, and maybe yours too – was that it looked great, and that I’d love the chance to do something like that. But reading Ollie Knocker’s story reminded me that there are certain protocols and etiquette around… More Ollie Knocker: A Cautionary Tale
I’m not tired, I’m…what? When I need my down-time, when I need to back out of something I’ve committed to, when I turn down an invitation, I usually say I’m too tired. People seem to accept that – sure, everyone knows that people with MS are often tired. And people understand what “tired” is. Everyone has… More I’m not tired, I’m….
“MS”( Or “SM”,the original title in Polish) is a documentary, filmed in Poland and both written and directed by psychologist Ilona Bidzan released last year, and just made available in You Tube. MS tells the stories of three patients with multiple sclerosis and how they deal with the chronic debilitating disease. The film focuses on the stories of the painter Emilia Ratajczak, photographer Wojciech… More MS on YouTube
In my household, we call it Jimmy Leg. In my daily journal, I just call it Jimmy, as in, “Jimmy wouldn’t leave me alone last night.” I stole it from Kramer, “I can’t sleep in the same bed with my girlfriend, she’s got a bad case of the jimmy legs, they keep me awake at… More Knock knock, who’s there?